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When the diagnosis is made, sometimes after many years of medical wandering, the patient is dismayed … but relieved. He can finally put a name on his symptoms and his sufferings.
Through its action, its support:
contributed to the creation, of the Centre of Reference of syringomyelia at the Kremlin Bicetre Hospital. This internet website is an illustration of the partnership of the medical community and patients through the Center of Reference and association in the fight led against this disease.
Both a “convenient tool” and an “information guide” its aim is to be exhaustive, but of simple use to the service of patients and their close relations.
It gives clear information on the disease and addresses of the centers in the various areas, social welfare or organisms.
Moreover, regularly updated it will present the latest progress of science, it will also be a precious tool for the medical community which will be able to find information, advice and even create contacts with the doctors of that Center of Reference.